1 in 68...Are Still Waiting...

WARNING:  Mama is not happy today.  Sarcasm and anger to follow...I am far past the point of gratuitous sugar-coating when it comes to all things autism people...deal with it.

Today the CDC released the latest statistics on autism prevalence in our country.

1 in 68.  ONE out of every SIXTY EIGHT children in this country has an Autism Spectrum Disorder (ASD). This is a 30% increase over the previous statistic of 1 in 88.  Oh, you remember 1 in 88...you know, the report from TWO YEARS AGO.  Yup, you read that right - 30% increase in just two years. 1 in 88 is just SO yesterday!

Here's something you may not be aware of - this study is done every two years on a sampling of children that are eight years old.  Though it is currently the year 2014, this is the 2010 statistic (four years to tally the numbers I guess?) This means that the 1 in 68 statistic applies to children that were born in the year 2002. Twelve years ago.  My son, and all of my other autism mama friends' kids were not even born yet.  Gee, I wonder what the number will be for Luke's year? At this rate, it will be 1 out of 2 for the year my daughter was born! I'm not really joking.

New Jersey is one of the 11 states used in the national analysis.  Ready for this one?

1 in 45 children in New Jersey has an ASD.  1 in 21 boys.

ONE OUT OF EVERY TWENTY ONE BOYS BORN IN THE STATE OF NEW JERSEY IN THE YEAR 2002 IS ON THE AUTISM SPECTRUM.

Yes, I am aware that caps signify yelling.  I AM YELLING PEOPLE.

For those of you that are not grasping the reality of these numbers (or if you just suck at math), let me throw a little comparison out there for you...there are more children with an ASD than are affected by diabetes, AIDS, cancer, cerebral palsy, cystic fibrosis, muscular dystrophy or Down syndrome – combined.

COMBINED. As in, all of them together.  The fact that each of these INDIVIDUALLY receives more government funding than autism does is a topic for another (angrier, sarcasmier) blog post.  But here's a little visual on that interesting situation from a few years ago taken from our good friends over at TACA (Talk About Curing Autism)...

And yet, the CDC continues to downplay the statistics.  They refuse to label this as an EPIDEMIC, or give it the national attention it deserves as a PRIORITY to be investigated and FIXED.  Did you know that they gave trampoline injuries a status of "epidemic" based on 1,200 children getting hurt in 1996? Hmmmm...now let's think about that.  Who suffers when a child is hurt on a trampoline? No, BESIDES the child silly!  They don't give a rat's ass about Timmy's busted arm! But you know who DOES pay? Literally?  Home insurance companies.  What? You didn't know that? Oh yes, home insurance companies can deny you coverage if you have a trampoline in your backyard.  I am going to venture a guess that the "epidemic" label helped the insurance companies push that sucker right on through.

You know who else can't be sued? Vaccine manufacturers.  What do I mean?  Well, it's really quite simple. In 1986, the Vaccine Protection Act was passed - hey, that sounds like it would be protecting us from vaccines? What's wrong with that?  Jump back sister...the only thing this act is protecting is the MANUFACTURERS of the vaccines. As of 1986, these "big pharma" hotshots could make anything to be jammed into our kids, and were given indemnification from legal action in any case of a negative reaction, whether it was a rash or death.  And then THIS happened...

Insurance companies...Big Pharma...wait a minute...this sounds like it has something to do with MONEY? Nah, that CAN'T be true!  

My son was diagnosed in the year 2007.  In one of the more twisted ironies of my life, that anniversary falls right around the same time as WORLD AUTISM AWARENESS DAY! (I could not possibly be more aware...trust me).  In the past seven years, I have heard TONS about what does NOT cause autism.  It's NOT the vaccines, it's NOT the environment, it's NOT medications, it's NOT the air in New Jersey (1 in 21 = 3 times the national average...hmmmmm), it's NOT GMOs or PRESERVATIVES in our food...

Can we please STOP talking about what is NOT causing it - and START figuring out what IS causing it?

Check the air, check the food, check the cleaning products, check the water, check the medicines, and YES - CHECK THE VACCINES - check them all - completely and thoroughly and figure out what the hell is going on before we lose another generation of children.  Enough is enough.

I want to finish this post by saying something that I don't normally say.  I don't feel the need to scare people - I have always gone by the assumption that parenting is an individual and personal journey for everyone, and unless someone ASKS me for an opinion on this stuff, I keep the gloom and doom to myself.  Well, I have changed my mind.  I am publicly stating that ALL NEW PARENTS or PARENTS-TO-BE need to be aware that this is happening.  It is scary.  But it is on you to be aware, to do the research, to trust doctors, but to QUESTION them when your gut is telling you to.  To read food labels. To limit your child's intake of acetaminophen, antibiotics or other medications when they are not truly necessary.  Take whatever precautions you can in your home to create a "clean" environment...because they DO NOT KNOW WHY THIS IS HAPPENING.  It could be all of that, it could be none of that, it could be a bizarre combination of several of these things...BUT WE DON'T KNOW.

This is not just a problem for families touched by autism.  This is everyone's problem.  Those that know my son may think that they are off the hook (dodged a bullet so-to-speak?) as he is the ONE in 68 in your world...but every two years that number is going up...and even if your kids are spared...do something about this today that may help other peoples' children...or your future grandchildren...go back to the top and read those stats again...what do you think they will be when your kids are having their own children?

Please get angry.  And then go to this website and share that anger:
Click here to contact our elected officials

For two years our autism community has used the mantra "1 in 88 can't wait..."

Well, now it's 1 in 68...and they are still waiting.

Oscars 2014...Alright, Alright, Alright!

CANDI'S OSCARS 2014 RECAP...

Welcome to the 7th Annual Oscars Fashion Recap...we have taken this puppy from email to Facebook to Blogger, Twitter and beyond...thanks for stopping by!

What can I say?  I've seen better, I've seen worse - that goes for the show itself as well as the fashions.  It continues to be a trying time in fashion over there in Hollywood.  There is no discernible style that I can see. In a word, I would have to say SAFE is the best way to describe the current trend.  Not many risk-takers, and the ones that do often get rapped across the knuckles for stepping out of the box!  But as always, the night had its moments...so let's get to it!

The ABC Red Carpet Special - Robin Roberts is always a class act...BUT how do you NOT have style guru Clinton Kelly from The Chew doing fashion commentary over that himbo Tyson Beckford? The man called Julia Roberts JESSICA. Nuff said.  You are not invited back. Leave the microphone at the door on your way out please. Buh-bye.

The E! Red Carpet Special - Broken record here - I'll use one of Kelly's favorite words - "This group is completely and utterly boring."  Kelly, Ross and Giuliana - all morons who bring nothing to the table other than vapid useless gushing. Still in need of a thesaurus.  And the "special" guests are a joke.  The only special guest this group needs is Joan Rivers - know why? Because this gang is like Randy Jackson mixed with Paula Abdul and sprinkled with happy fairy dust. THEY LOVE EVERYONE.  EVERYONE LOOKS INCREDIBLE.  I can't.  And note to E! - if you are going to have Ryan Seacrest in the money spot, get that boy a platform or something - he just looks positively miniscule interviewing all of these strapping actors and amazon actresses that dwarf him.  No bueno.

RED CARPET SPOTLIGHT:

Click here to view the now Annual "Jennifer Lawrence Falling At The Oscars"

ON WITH THE SHOW...

Aaaaahhhh Ellen - always a fun time - and she didn't disappoint - love her out and about in the audience throwing them all off guard...she really has the perfect shtick for the Oscars - funny, but not condescending...she is safe...just as a host should be...the Awards and the nominees (well, the dresses too) should be the STARS of the show. The pizza bit was genius.  And mad props to the stars that actually ATE pizza while in their Oscar finest.


My Personal Highlight - On a night packed with amazing musical
performances (Pharrell, Idina, Bette, U2 - all amazing), my standout moment was PINK singing Somewhere Over The Rainbow during The Wizard of Oz tribute.
A Side Note About Me:  Only a few know this about me (my sister is giggling right now), but I am PETRIFIED of The Wizard of Oz.   I have not watched it since I was a child due to chronic nightmares (those frigging monkeys).  After seeing Wicked on Broadway this year and now this, maybe I can attempt to tackle my Oz-o-phobia (well, probably not).

Matthew McConaughey & The Cat Lady...Oh no.  What a shame.  One can only hope that they dragged Kim Novak out to serve as a cautionary tale to all of the younger actresses in the audience not to take botox and plastic surgery too far...YIKES.  I know she is 81 years old, but really.  Can we all just agree that the Academy is not doing any justice to these "legends" (I am speaking about you too Mr. Poitier) by sending them out on stage and giving them the Dick Clark treatment?  They can barely see the damn TelePrompter!  You want to honor them?  Show some FABULOUS clips of them on film in their heyday and then shine a light on them standing to wave as they receive the appropriate standing ovation.  OK - stepping down from soapbox now.

And then THIS happened.

Ex-squeeze me? Baking Powder?  (YES! Wayne's World reference opportunity!)
Ummmmm...really John?  REALLY?  ADELE DAZEEM? Who in God's name is that? Did you even READ the script?  Have you heard of the woman Mr. Musical-lover? Did you skip rehearsals? You don't get a pass on this.  On a night when presenters strung together multiple ethnically-tinged monikers, you blow one name? You sir, just like Mr. Beckford, are banned.  Leave the stage, and do not return unless it is to dance.  No talking.

The Superstar Selfie That Broke Twitter  #genius

AND THE WINNERS WERE...

This was a night the oddsmakers dream of...all four acting awards seemed to be pre-determined...but the surprising part was that THREE of these winners made AMAZING and HEARTFELT speeches that will be remembered for years to come...the "newbie" joy of Lupita as she recognized that her happiness was inevitably tied to the miseries suffered by her ancestors, Jared showing maturity in honoring his brave single mom, Matthew the family man getting philosophical in a good way...I cried three times.  Who left me dry? Cate Blanchett - methinks she is a little condescending - I believe that #suckitjulia was supposed to be an inside joke between them - but it's not usually a good call to bust out inside jokes in front of a billion people.  She forgot to mention DAME Judi Dench in her "mentioning the other nominees so I look appreciative" paragraph and I am pretty sure that she bashed the length of Gravity (and indirectly the film itself) while "appreciating" Sandra Bullock. Kind of ironic that Cate was the one of the four to NOT display class, humility and pure joy.  Hmmmmm...

And I don't really understand the new trend in "splitting" the Best Director and Best Picture Awards.  Seems to be that you can't really have one without the other...two amazing movies...I guess it's just a "share the wealth" thing.  Still strange.

OK - enough about the stupid awards...let's talk fashion!

Kerry Washington - Jason Wu
Grecian Grey Perfection! Way to embrace the BUMP mama! You may be a TV girl, but you shine on that red carpet like the brightest film star! Yes, I have a total GIRL CRUSH on her. Can't lie. But still one of my faves of the night - the dress, the hair, the make-up...the way she ate PIZZA in the audience...LOVE HER!

Sandra Bullock - Alexander McQueen
You nailed it Sandy!  I have been rough on you in past years - if it wasn't the dress, it was the hair, or the weird lipstick choice. But this is a home run.  Dress is stunning, fits like a glove and I am OBSESSED with your MOVIE-STAR hair! It's just a shame that you didn't get up on that stage to REALLY show it off.  At least we got to see you all 742 times that Gravity won a technical award.  Nice job!

Charlize Theron - Christian Dior Couture
Yowza...that is how you wear a black dress.  Those of you that have read this blog in the past know my rules on black dresses...if you are not the agent or the publicist, it's a no-no. If it MUST happen, then it has to be BIG. Like over-the-top HUGE. This dress fits the bill. I mean, the woman is an Amazon Goddess with neck for days...she is like a human clothes hanger...but even so, this is a stunning dress on her.  Perfect.

Kate Hudson - Atelier Versace
Wow.  It's like an homage to American Hustle - she goes against all of my usual dislikes (white dress, flat-girl cleavage attempt) and turns it into a big fat LIKE...make that LOVE... dress...hair...home run Kate...now listen to me...you are never, EVER, under any circumstances to visit your Mom's closet - ok? You will notice that she is not up here at the top of the list like you...stay golden Kate!

Jennifer Lawrence - Dior
Contestant #1 in the Peplum Parade - but the only one on the "like" side for me. (Amy & Julia - do you hear me knocking?). Listen, much like Charlize, J-Law has the whole swan thing going on and her upper-body is unusually lengthy - not all dresses will look right on her, but this one works.  Honestly, without the funky backwards necklace thing, it would fall this side of boring, but she put her own twist on it.  I dig her - she is definitely on my GIRL CRUSH list.

Lupita Nyong'o - Prada
She was just the princess of the night - and for those that don't follow Awards Shows and red carpets obsessively - she has been putting on quite a fashion parade over the past two months.  This dress looks made for her - I probably would not even like it on most people, but on her, it's perfect.  I love color!

Anna Kendrick - J Mendel
Anna - I saw you pop up on several worst-dressed lists for this one - but I like it!  It's different, but in a good way for once...I like the crossover top and the waist detail (with matching clutch)...the hair could be better...kind of drab...but the dress is a little edgy, just like you.

Cate Blanchett - Armani Prive
It just seems done before. It's pretty, maybe a little too figure-skater at the top for my tastes, but I can't really say that it's ugly. It's just not wowing me. I am not big on the whole nude/illusion motif...it seems like it may be one of those dresses that's stunning in person and just doesn't photograph well? But you have hit higher heights in past years...so I must say that for your Best Actress Win year, I was hoping for more.  Earrings are great. That's all I got.  #reaching

Amy Adams - Gucci
Contestant #2 in the Peplum Parade
Amy. Let me clue you in on something.  Your hair is a MAJOR asset for you. So slicking it back into a bizarre finger wave/french twist thing is just not going to be a good time. The dress is aight. Again, a sense of deja vu all over again. Navy never comes across on camera the way it does in person. AGAIN...with your skin and hair and eyes - VIST THE JEWEL TONES SECTION OF THE COLOR WHEEL. You will find magic there...trust me.

Anne Hathaway - Gucci
Also Gucci. Hmmmm...I think I see where you are going here. Last year, you offended the universe with that Pepto pink horror with the bizarro neckline...so THIS year, you wanted to flip the deck and go EDGY.  Just not sure if you can pull off edgy Anne. You also have an amazing body for couture...but much like last year, I like the back more than the front.  And, much like last year, IT'S THE FRONT THAT WE ALL SEE. Can we try and find a happy medium somewhere between Pink Satin Princess and Gladiator Armor Breastplate? Thank you.

Viola Davis - Escada
COLOR! COLOR! YAY! Thank you Viola for bringing some color into a neverending barrage of black, white, metallic and the occasional red. It's a great dress and you wear it well.  Love the cuff bracelets too...perfect touch.  Score!

Naomi Watts - Calvin Klein
Another one that has done it better in past years. It's a little, dare I say, mature for her? She is aging herself. And the hair is not helping - listen up ladies - hair should not fall on to dress.  High neck = hair back or up or both. And it has a weird poof thing going on in the front - the hair I mean. She gushed on and on about the necklace on the red carpet - why not pull the hair back and show it off? #confused

Penelope Cruz - Giambattista Valli
I don't know - I feel like someone wore this already. I always want to like her - she has rocked some SICK dresses in the past (remember that flame one in deep red) - this seems very safe for her. Like Safe Deposit Box safe. The only good thing I can say is that her pale pink dress is prettier than Camilla Alves' pale pink dress (Matthew's current wife - Penelope is the ex - get it?) #bestrevenge












Bette Midler - Reem Acra
The Divine Miss M - showing off the ladies! I love it! I actually much preferred this dress to that sack of potatoes that you wore on stage to sing in.  It must be a real bitch to get changed halfway through the show. I am guessing there are Spanx involved in this scenario, and I KNOW how that goes.  How about don't change next time? Works for us. We won't judge. Well, we might, but only if the first dress sucks.





















Goldie Hawn - Atelier Versace
I am convinced that she has worn the exact same dress to every industry event since she met Kurt Russell. Has no one told her that it's just not that flattering? Does Kate not say something? I find that hard to believe. And do something with that rat's nest on top of your head already. Pull a Peter Brady Goldie - when it's time to change, then it's time to change. #shanananana

Glenn Close - Zac Posen
Contrary to many of the dresses on this list, I am thinking that this one might look better in PHOTOS than it does in person.  The fabric looks questionable. I like the silhouette though - I much prefer this to your manly-man pantsuits. But I must point out that if you were wearing a pointy black hat, one might think that you were subliminally auditioning for Elphaba in Wicked.  Just saying.

Jessica Biel - Chanel
It's an ok dress...there's just something missing here.  Oh wait, it's her man candy! Paging Justin Timberlake...your wife looks so much better on the red carpet when you are by her side - don't you have a jet or something? Can you not schedule your World Tour around this shit? I am sure that Jay Z does that for B. Come on now. You're better than that.

Jennifer Garner - Oscar de la Renta
I liked it better on the red carpet.  On stage, it was FLAPTASTIC. I will always love you Sydney Bristow...you know that.  But do you really expect us to believe that you and Ben can't scrape together the coin for a sitter for nights like this? You know what happens when half a married couple shows up at these things...that's how rumors start.  I hope you and Biel at least split the limo.

Laura Dern - Alberta Ferretti
Winner of this year's PLEASE EAT A BURGER AWARD. That is all. #yourspineisshowing

Meryl Streep - Lanvin
Yeah, yeah, I know I say it every year.  "Fashion doesn't matter - it's Meryl Streep!"  But can you throw us a bone once in a while? A color? A one-piece? A hairdo? It's nice to be the greatest living actress on the planet, but pretty can be fun too!

Julia Roberts - Givenchy
Contestant #3 in the Peplum Parade
I do not like this dress. It reminds me of Jamie Lee Curtis in True Lies - like you might just RIP out that weird lace insert between the girls and make something happen.  But alas, this is not to be. Julia - you owe it to a whole generation of girls that first became obsessed with you as a somehow clean yet skanky hooker in Pretty Woman and followed you right into the self-righteousness of the somewhat clean yet skanky single mom in Erin Brockovich.  Dump the lace. Add some skank. And PS - the hair is really bad too.  Big mistake. Huge.

Liza Minnelli
Dress and Hair Streak by Autism Speaks
This is just too easy.
Forget it.

Sally Hawkins - Valentino
Sally - I am so very sorry, but you have been awarded the Tilda Swinton Award for 2014. I know it's hard not to take this personally, but trust me when I say that there have been other years where this award winner wore dresses that were way fuglier than yours. But really - you seem like a tiny little thing - though it is hard to tell since you are hiding under your great-grandmother's lace tablecloth and forgot to stop at the tailor to get yourself properly fitted.  One word for you sweetie...STYLIST.  Get one. Please.

THE PERFECT COUPLES ON PARADE...

Brangelina
Together since 2005...
a bunch of kids

Will & Jada
Together since 1997...
Couple of kids...

The Adorable Tatums
Also together since 2005...and a new baby! 

Matt & Camilla
Married only 2 years, but oh so cute...
Two young kids...

 Angela Chase and Jordan Catalano

Together the longest - since 1994...

Wait, what? Really?

Well, a girl can dream...

#mysocalledfantasy

That's a wrap folks! It's been fun!

Until next year...

Candi

Scratch That Surface. Please.

Ok folks - let's call this post a public service announcement of sorts...especially for those of us who spend a good chunk of our lives on all forms of social media and the internet.

I don't want to focus solely on Facebook (though that is the place where most of my WTF sensors go off...), so I will say that the following guidelines apply to all forms of social media where "sharing", "liking", "re-posting" and "commenting" are expected actions and options.  I am asking you for a huge favor...before you do any of the actions that are air-quoted in the prior sentence, please adhere to the following simple rules:

STOP. THINK. RESEARCH AS NEEDED.

Listen, I am all about good conversation - I love a healthy debate, enjoy sharing my opinions and arguing my side of things.  BUT...I also love to learn about new things...and am more than open to changing my opinions on a given topic if what I am "learning" leads me in a new direction.

Case in point - thanks to my countless hours of research on all things autism, I have expanded my horizons dramatically on the topics of medical care, nutrition, neurological science, vaccinations, toxins, gluten, therapies, alternative medicine, insurance, IEPs...the list goes on.  When this journey began, I read everything. I believed everything. I didn't necessarily share everything.  I knew that much of what I was studying was "off the beaten path" and didn't want to be a shit-stirrer.  It wasn't about getting others to believe me - it was just about collecting knowledge to better help my son.

But now that I am a few years in...my feelings have changed.  I believe LESS, but I share MORE. Because I have quickly figured out that you definitely CAN'T believe everything you read.  And the explosion of social media has lead to an epidemic of over-sharing of misinformation...quotes, articles, blogs, photos...people tend to click that SHARE button before determining if they are sharing fact or fiction.  This is infuriating.

Why do I have such strong opinions on this? Hell, why is it any of my business? Well, for those of us that are out here "fighting the fight" in the Wonderful World of Autism, or against GMO food, or for equal rights, or against animal cruelty, or for your chosen political party, or against domestic abuse...or any "cause" that you have decided is worth your time and passion - nothing is more frustrating than witnessing the dissemination of lies, propaganda, exaggerations, and general misinformation about your chosen agenda.


ALL THE NEWS NOT FIT TO PRINT...Here's a news flash for you. Just because it is written on the internet does not make it true.  If you are reading an article and it sounds a little off, a bit hard to believe, maybe a touch hard to swallow...see where it came from.  Determine if you are reading something that is FACT.  There are a rash of satiric websites that exist solely to publish completely false "news" stories, and then the authors sit back in their chairs and LAUGH AT YOU as they watch you share, comment, like and re-post what they have created as if it was "bible".  Here is a short list of sites that are SATIRE. UNTRUE. NOT REAL NEWS.  Read the list, remember the list, and only re-post items from this list if you are doing it knowingly, and letting your peeps KNOW that you know so THEY know...got it? The Onion, Private Eye, Indecision Forever, Newsbiscuit, The Spoof, Sports Pickle, Unconfirmed Sources, CAP News, The Enduring Vision, Derf Magazine, News Mutiny, The Dandy Goat, Premature Eulogies, Not Safe For Home

And then we have Wikipedia, Uncyclopedia and Urban Dictionary - sites like these are almost WORSE than the satiric ones - because they are "user-defined" - any Schmo with a laptop can go on there and write whatever they want - WARNING! THESE SITES ARE NOT ACCURATE! DO NOT QUOTE THEM!

BLOG POSTS - UNBIASED OPINION OR "ON THE BOOKS"?  You may not know this, but there is an entire "business" out there involving fake blog posts.  What is the point of a fake blog post, you ask? How can it be fake if it's someone's blog? They are being paid to write it. Not paid like royalties, paid like briberies.  Still not following? People are paid money to write an "opinion" that someone in corporate America needs to be pushed upon the general public.  There are powerful and wealthy lobbyists for every stance, religion, cause and product in corporate America.  By planting this "propaganda" within an innocent blog post, they are able to forward their agenda unquestioned - because it's just one person's story, right?  Think about what you are reading.  Does it sound genuine? Use your instincts - if you aren't sure, Google the author's name - see what comes up.


WHO SAID THAT?  The quotes.  Oh, the quotes.  You may not realize this, but the majority of the "celebrity" quotes out there in the online universe were never actually spoken by those getting the credit. Case in point...our dear friend Marilyn Monroe.  If you were to use the internet as your judge, that woman was a goddamn genius.  This is false. There is no actual proof that she muttered ANY of the quotes that are regularly and repeatedly attributed to her.  In fact, her life and experiences tend to dispute most of those quotes.  But people see her face...and SHARE SHARE SHARE...hey, she was a beautiful and powerful woman that (many) men adored...isn't that enough? She needs to be a brainiac too? Marilyn is not alone - this also stands true for Audrey Hepburn, Jackie Kennedy...let's all stop putting words into their mouths please...Here's a great blog on this very topic...

Of course, you have the option of ignoring everything that I said here and going on in your little world of sharing everything under the sun...but you would be doing yourself a disservice.  Realize the impact of your opinions - yes, when you are sharing something, liking something or commenting favorably on something, you are forming an opinion. You are endorsing it.  You are lending it credibility. This is a powerful tool and should be respected accordingly.

Now...SHARE THIS POST!

(Only kidding...totally optional)

A Dream...Reinterpreted

Today is Martin Luther King Jr. Day.  He is remembered for his tireless fight for civil rights and equality, culminating in his untimely death by assassination.  We have all heard the stories and read the quotes over the years attributed to Dr. King.  As with most things in my life, autism brings a fresh perspective on events from the past.  Just as Dr. King dreamed his dream of freedom and equal rights for all, I too have a dream.

Dr. King with his wife and daughter

I dream of a world where the people in the autism community can come together and figure out a way to fight for the same things without cutting each other down.  Where high-functioning and low-functioning can live together on this thing we call a spectrum and both get what they need, when they need it.  Where all parents and educators can work together and figure out that we are stronger united than we are divided. Where we can learn to abandon the black and white and embrace the grey area - respecting the individuals that have their own voice and are not looking for a "cure", while still recognizing that some of their more affected counterparts on the lower end need intervention from the medical community and the government to get to a better place.  

After the years that I have spent reading countless posts, articles, comment threads and chat rooms, I can safely say that this dream is far from being recognized.  There is a disconnect that is so vast, so emotional that it will take much to overcome.  But I refuse to be black and white.  I will follow this journey and embrace all sides...I will share what I have learned with as many as will listen - I will continue to raise funds and serve in a volunteer role in Autism Speaks - haters are going to hate, but I will defend my mission - with knowledge and with passion, not with regurgitated rhetoric and untruths...and I will work tirelessly to see this dream come to fruition. It may not help my boy, but it will help someone's down the line.  And that is reason enough for me.

In looking back at Dr. King's more famous quotes, I am struck by how many of them can be applied to my ongoing autism journey...

“Never succumb to the temptation of bitterness.”
In the first days following Luke's diagnosis, shock was quickly followed by a general numbness and an overwhelming urge to just curl up in a ball and be mad - angry - bitter - all those things - why my boy? Why me? What did I do?  I knew without a doubt that if I gave in to those feelings that there is a good chance I would never have gotten out of that pit of despair.  It still rears it's ugly head once in a while, but I have figured out how to get past it (a good cry, a glass of wine, a chat with a friend...all good remedies...).

“Faith is taking the first step even when you don’t see the whole staircase.”
The happy ending seems so far away sometimes - when I let myself think about my son's future, it's hard to ignore that the picture in my head is not perfect - but taking each step as it comes blurs the edges of that picture and gives me hope that it will change a little bit every day.

“The ultimate measure of a man is not where he stands in moments of comfort and convenience, but where he stands at times of challenge and controversy.”
I have loved my husband since I was 14 years old.  But NEVER have I loved him more than when in the heat of an autism-induced tit-for-tat spat I said to him "You can go - no one ever judges the father when he leaves" and he looked at me and replied "I would judge myself. And I'm not going anywhere."

“We may have all come on different ships, but we’re in the same boat now.”
Aaaaahhhh my autism moms...love them like sisters...rely on them like crack!  Where would I be without them? I don't want to know.  We are all different - our kids are all living on different parts of the spectrum - and let's face it - we would not be friends without autism - but we each have an oar on this great big boat...STROKE...STROKE...STROKE...

“There comes a time when one must take a position that is neither safe, nor politic, nor popular, but he must take it because conscience tells him it is right.”
Over the past seven years, I have read more information on autism than I thought possible.  And my conclusions don't seem to "mesh" with the mainstream - I have a very clear and specific opinion about autism and why it is happening...and even though I don't feel like my stance is currently on the "publicly accepted" list, it is what it is - I couldn't change it if I tried - I feel it in my heart and in my brain and in my gut.  You don't have to agree with me - I respect all journeys...just make sure you respect back.

“If you can’t fly then run, if you can’t run then walk, if you can’t walk then crawl, but whatever you do you have to keep moving forward.”
One day at a time - the autism mama's mantra - keep moving - keep learning - keep doing - and your child will get there.

"We must accept finite disappointment, but never lose infinite hope.”
Hope.  It's the only word that matters on some days.  What I thought was a bad day a few years ago is now a good day - these disappointments serve to make me stronger and more prepared for battle...and make no mistake, it's a battle.  And I plan to win.

Happy Birthday Dr. King...and thank you for the inspiration...

Where Dreams Come True...Well, For Most Of You

Us special needs families just can't catch a break - even in the most magical place on Earth!

Disney recently announced that they will be overhauling their policy on special treatment for visitors with disabilities.  No more "please pass go, head to the front of the line" for us - we will now be treated like all the other families.

Why the change? It seems that it has become somewhat of a "game" for non-disabled (normal? healthy? abled?) families to beat the system of waiting on lines in Disney World.  So, how, you ask, do they accomplish this? By faking a disability. Yep, that's what it says. FAKING a disability. Apparently, FastPass just wasn't cutting it for them.

In fact, an investigation by an NYC newspaper revealed that wealthy families from Manhattan have bragged about hiring a "disabled" person to chuck into a motorized wheelchair and schlep through the parks as if they were a member of the family - just to be eligible to receive these passes for the whole group.  One wealthy mom was even quoted as saying "This is how the 1% does Disney..."
 
I will pause while you swallow back down your lunch...

Let me go on record here and state that I have not one speck of interest in taking my autistic son to Disney. I have three children, spread apart over a 13-year span.  We took the oldest when he was almost six...he was an only child - he had a blast.  We will take the 2-year old in a few years so that she can "share the magic" too.  Truthfully, I have yet to feel the urge to return. I have always found the words Disney Vacation to be a contradiction in terms.  It is hard work, especially if you are a Type A Psycho like me (I had a binder - with tabs - and daily laminated sheets of our events and activities...).  Of course, autism has stripped me of much of my Type A-ism over the past few years, so I am not really sure how I would even survive the planning and execution.

My Luke is eight years old...do I think he is missing out by not going to Disney?  Nope. But, he is very low-functioning, and while he does remain in constant motion all day, I have no way of knowing if he would love or loathe the rides.  And in his case, it would be about more than just waiting on line.  Once the ride ENDED, he would not want to get off of it if he DID happen to enjoy it.  Just the thought of the plane ride has me reaching for the Zoloft as I type this.  I envision nothing but horrific nightmares when I think about bringing him to the place where dreams come true.

HAVING SAID THAT...I will still stand up for the families that have special needs children that would benefit from the joys of a Disney vacation.  Those children who are cognizant of the fact that this magical place is out there, and just need a little help to make the experience a successful and enjoyable one.  Is it really that much to ask that they be allowed to avoid the sensory overload of a long line in order to get this little piece of happy in a life full of daily challenges and hurdles that many don't even comprehend?

I am fully aware that there are a number of people out there that take exception to any preferential special treatment afforded those with special needs.  There are also people out there that think autism is simply a discipline problem. If you are one of those people, I am not sure there is anything that I can say to you to change your mind.  But I am extending an open invitation to you...come over anytime!  Spend a Saturday in my home...you will leave with a new perspective on what it really means to live with special needs...and you may even realize that you don't have it so bad.

So because a large number of families that have been blessed with healthy, regular-functioning children have decided to take advantage of a system that was put into place to help those with special needs, they have ruined it for everyone, including themselves. I am sure that Disney will put a new policy in place to replace the old.  That is the type of company that they are - they don't like bad press.  But how unfortunate that this overhaul is even necessary - those parents that brought about this action should be ashamed of themselves. I would give my right arm to wait in a long line with a "regular" kid.

Count your blessings people...



  

More Than Words...

Yes, I read the letter.  Several times.

I will post it here just for the benefit of those that have not experienced the uneducated wrath of "one pissed off mother"...

This eloquent missive was stuck underneath the door of a family's house in Canada - home to a teenage autistic boy - and big surprise - no signature!

The most shocking thing to me about this letter?  The fact that I do not find it shocking.

Yes, it's abhorrent, offensive, crude, aggressive, ignorant, abusive, repugnant, abominable, callous - I could go on - but why, you ask, am I not shocked?

Because we live in a society where the string of adjectives above describes not only this letter, but a large segment of the people that walk among us.

We live in a society ruled by narcissism, skepticism and egotism.  Common courtesy is out the window. Unwritten rules no longer exist.  And written rules are often ignored.   We live in a world full of confrontation, judgement and litigation.  People are mean. People are selfish.  What's in it for me? Why should I help you? What have you done for me lately?  Kindness is the exception rather than the norm.

Take the news for example.  How they make a HUGE DEAL out of someone doing the "right" thing. We get treated to a "feel-good" story a couple of times a week...usually the result of a Good Samaritan doing what used to be considered normal. Lending a hand. Wait, is there a reward? No? Damn.

Witnessed any accidents or fistfights lately?  Or even extreme weather?  Did you notice all the people standing around with their phones out, taping it and taking pictures like they have a Press Badge but not giving two thoughts to whether or not someone may be in danger.  Pictures first! I'll call 911 right after I get this shot!  

This letter is about so much more than autism.  It is a shining example of the lack of compassion, empathy and general benevolence that has poisoned our world.  Not only against autism, but against any group that is different in any way.  People fear what they do not understand.  Autism clearly fits that bill, but can be easily substituted with a variety of communities that "they" don't consider to be normal.  Color, creed, culture, class...all up for judgment.

I could write a couple of paragraphs that blames the media, the government, rap music, technology, etc.  But let's call a spade a spade here - it's all about the parents.  A baby is not born with the ability to judge, to hate, to crucify, to detest...these are learned behaviors.

Bringing a child into this world comes with a set of responsibilities that many "adults" do not seem to comprehend.  First and foremost, it means that the child and its needs come first.  BEFORE YOU. BEFORE YOUR NEEDS.  You are signing an unwritten agreement to raise a human being - this requires nurturing and love and security.  If you can't get on board with this concept, or you will not be able to handle being SECOND, then don't have children.  It's really that simple.

As the mother of a non-verbal autistic child, I am tested in this capacity beyond the traditional requirements. My son is demanding, exhausting, taxing, challenging - he requires more from me than I ever thought I had to give.  There are days that I hate my life.  Yup, I said it.  And there are days that I see the tiniest glimmer of hope and I remember that my boy teaches me things.  How to be patient, how to appreciate the little things, how to not give a second thought to so much bullshit that used to clutter my brain.  As much as I would not wish this journey on anyone, I will admit that I have evolved into a better human through my daily dealings with autism.

Can the person that wrote this letter say the same?  I think not.

This letter does not make me angry.  It makes me sad.  I feel sorry for the person that wrote this letter.  It must hurt to have that much hate in your heart.  And I feel sorry for her children.  They will most likely grow up in an environment of anger, resentment and judgment instead of nurture, love and security.  And they will suffer for it.  

As will we all.

Dedicated To The Ones I Love...Permanently.

Guess what? I got a tattoo last night.

To many, this will be shocking.  I am a girl that speaks my mind, and in the past, I have spoken "against" tattoos - I mean, to each his or her own, but not for me.  Just never been a fan.  Could never lose that visual of what it will look like 30, 40, 50 years down the road.  And let's be honest, I do not possess the body beautiful...there was a time when I used to think "well, maybe if I ever achieve that rocking body - THEN I will think about it"...

So what changed?  Well, I guess if you were to ask me that question, my answer would be a resounding "EVERYTHING."  What hasn't changed? What's black is now white, what's hot is now cold, what's up is now down.  Autism has flipped our world on its ass, and kicked us in the shins just for good measure.  My Type A and OCD tendencies have been damaged beyond repair...oh, I still think that way - I just do not have the time, energy or money to live that way anymore.

I have learned to let things go.  I do not write as many lists as I used to.  I take it one day at a time. I have less food in the refrigerator and more dust on the mantel - and guess what? We still wake up every morning and get through the day.

Don't get me wrong - this isn't a whole "stop and smell the roses" lecture - this is just our reality. Our days are hard - full of challenges we never expected to have to deal with.  But it is what it is - one of my favorite quotes has always been "Life is what happens when you're busy making plans." I know now that plans go awry...we can't predict what will come next in this crazy thing called life...we just have to find a way to change ourselves to be able to handle what comes down the pike.

So what the hell does any of this have to do with a tattoo???

Well, being a reformed (sorta) Type A/OCD/Planner Girl has lead me to think that maybe I need to be more impulsive once in a while.  When faced with the opportunity to do this yesterday, my first instinct was to kibosh it immediately - and then I started thinking about all of my autism mama friends that have personal "tributes" to the cause inked on their bodies - and for some reason, the whole idea of making a PERMANENT statement like that seemed appealing...what better way to truly commit yourself to a cause that you are passionate about? I raise buckets of money...I talk about autism when people ask questions...I am in this thing for the long haul, like it or not!

While it is autism that lead me to this little personal epiphany regarding body art, this doesn't change the fact that I have 3 kids...all of them sharing space in my world. And let's not forget my husband...as of this November, we have been "together" for 28 years...I guess that deserves some sort of symbolic recognition?

So how to address "the cause" and yet still make it about all of us?

Ta-Daaaaa (as Gia would say)...here it is - the four pieces of my heart - connected to me, and to their father as the middle piece - the colors represent their birthstones - Adam (sapphire), Evan (topaz), Luke (peridot) and Gia (ruby)...artistic props to a genius tattoo artist because if you saw my original rendering...let's just say that art is not in my repertoire!

Yes, I got a tattoo last night.  I did something impulsive that was outside my normal comfort zone. I did not over-analyze it or write a list of pros and cons about it, or research its prophetic meanings on Google...I just went with my heart.